Dealing with chronic disease forces you to expect the unexpected. New symptoms and weird manifestations of the disorders pop up all the time. Occasionally, a non-related medical issue will present and you have to figure out if it is truly a new symptom or a manifestation stemming from a previous condition. As you know, all … Continue reading Achoo!
Life throws so many obstacles our way. It can be easy to get caught up in it all. This means sometimes forgetting your limitations and needs until you have passed a tipping point. Add to this the general difficulties of living with chronic symptoms in a chaotic home environment… maintaining your normal flies out the … Continue reading A chaotic home
There are so many people with chronic and mysterious symptoms that the western world has developed show-and-tell entertainment around being sick. There are television shows, corporate websites, online series, and major news segments dedicated to showcasing all of our complications. Why do we engage with industries that make a profit off of our pain? Simple. … Continue reading Medical desperation
Tiredness and fatigue are not the same things. There is a general perception that being fatigued means the same thing as being tired. When in fact, the two words describe very different experiences. Tiredness hits like a wave that you ride. You go from active and energized to a slowly building exhaustion that crests with … Continue reading More than tired
There isn’t much that can be done to dramatically ease chronic pain. The medical community calls it “intractable” and “difficult”. The same can be said for many chronic disease symptoms. While we have treatments that show promise and medications that reduce severity, actual life-changing solutions are rare. It is hard not to stew in frustration … Continue reading Try it out. The long list
It isn’t very often that I am absolutely and completely useless. I can usually pull myself together enough to do a chore or work on something creative. In fact, the act of completing a small goal helps bolster self-worth and a positive mental state. However, today was an empty day. I was physically, mentally, and … Continue reading When I just can’t