Tagged symptom management

Coming around

It seems fake. I mean, whose legs aren’t restless? Is there anyone who can sit or lay comfortably in one position without needing to shift? Everyone needs to move from time to time. But, it turns out that Restless Leg Syndrome is a just a terrible name for a real disorder. I think it falls under the same name-fail as Chronic Fatigue Syndrome.  So, RLS is an actual condition and I have it. It started slowly and developed as a branch off of my Autonomic Small Fiber Neuropathy symptoms. I want to discuss what RLS truly feels like. The commercials…

Achoo!

Dealing with chronic disease forces you to expect the unexpected. New symptoms and weird manifestations of the disorders pop up all the time. Occasionally, a non-related medical issue will present and you have to figure out if it is truly a new symptom or a manifestation stemming from a previous condition. As you know, all those aches and pains that encapsulate chronic diseases show up in wildly diverse ways.  One of my daily symptoms is nausea. It can be severe or mild, but it is always there. Because of this, when I’m coming down with the flu or even food…

A chaotic home

Life throws so many obstacles our way. It can be easy to get caught up in it all. This means sometimes forgetting your limitations and needs until you have passed a tipping point. Add to this the general difficulties of living with chronic symptoms in a chaotic home environment… maintaining your normal flies out the window. Many people with disabling medical conditions don’t get a lot of say in where they live. Some stay with family, others can manage independently, and some end up drifting between temporary shelters and homelessness. A few of us live with partners, friends, or strangers.…

Medical desperation

There are so many people with chronic and mysterious symptoms that the western world has developed show-and-tell entertainment around being sick. There are television shows, corporate websites, online series, and major news segments dedicated to showcasing all of our complications. Why do we engage with industries that make a profit off of our pain? Simple. We are desperate. With hundreds of thousands, even millions of people looking for cures to their long-term ailments, the appeal of sharing your problem with the world and getting a solution quickly is overwhelming. Maybe there is a doctor out there who is interested in…

More than tired

Tiredness and fatigue are not the same things. There is a general perception that being fatigued means the same thing as being tired. When in fact, the two words describe very different experiences.  Tiredness hits like a wave that you ride. You go from active and energized to a slowly building exhaustion that crests with a barrage of being tired. Tiredness can be fixed with different versions of repose. From needing some time to sit down to sleeping, it can often be alleviated with caffeine or a nap. You can rally your energy and complete tasks even when you are…

Try it out. The long list

There isn’t much that can be done to dramatically ease chronic pain. The medical community calls it “intractable” and “difficult”. The same can be said for many chronic disease symptoms. While we have treatments that show promise and medications that reduce severity, actual life-changing solutions are rare.  It is hard not to stew in frustration and depression when you deal with constant broken body issues. Every single moment reminds you why you are different and how you don’t function. Due to that incessant aggravation, I’ve compiled a list of things I use and do to make my life just a…

When I just can’t

It isn’t very often that I am absolutely and completely useless. I can usually pull myself together enough to do a chore or work on something creative. In fact, the act of completing a small goal helps bolster self-worth and a positive mental state. However, today was an empty day. I was physically, mentally, and emotionally drained of function. With chronic illnesses, there is a lot of recovery time for simple tasks. I’ve written about it before and it will continue to be a theme in my posts because it’s important to acknowledge the difference between recovery and laziness. There…