I’m just a girl – Diagnosing part 5 (Small Fiber Autonomic Neuropathy)

Numbness on the outside of my right leg. That was the starting point for my entire Small Fiber Autonomic Neuropathy journey. It’s a long one. Hold onto your hats and cozy up with a cup of tea. Here we go: I had recently come back to the United States after working overseas for a few … Continue reading I’m just a girl – Diagnosing part 5 (Small Fiber Autonomic Neuropathy)

Skimming pills

Most chronic illness and pain sufferers take medications. We require synthetic and natural interventions to live our lives. Certain meds make things significantly better, others keep us at maintenance levels, and some have the very heavy burden of keeping us alive. Because of this dependency, our relationships with medical providers and pharmacists are of the … Continue reading Skimming pills

I’m just girl – Diagnosing part 3 (Postural Orthostatic Tachycardia Syndrome)

I just assumed that every person became light headed when they stood for an extended period of time. Standing up quickly or being overly active would always leave me with a spinning room and short light show. It was something I naturally compensated for through the years. I figured that everyone lived with these daily … Continue reading I’m just girl – Diagnosing part 3 (Postural Orthostatic Tachycardia Syndrome)

When they ask, “What’s wrong with you?”

My officially diagnosed conditions and their medical definitions are as follows:   Ehlers-Danlos Syndrome (EDS) - Hypermobility type: “A group of disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening … Continue reading When they ask, “What’s wrong with you?”