I just assumed that every person became light headed when they stood for an extended period of time. Standing up quickly or being overly active would always leave me with a spinning room and short light show. It was something I naturally compensated for through the years. I figured that everyone lived with these daily … Continue reading I’m just girl – Diagnosing part 3 (Postural Orthostatic Tachycardia Syndrome)
Tag: POTS
Just a little movement
I didn’t realize that I was athletic until I got sick. Playing outside everyday and having sports integrated into my life was something I took for granted. I grew up in a rural place where there weren’t professional or academic sports teams. Everyone was just always outside doing activities. My dad grew up playing organized … Continue reading Just a little movement
Zebra looking for an umbrella
Having more than one disease complicates everything. Most of those diseases being rare and understudied turn those complications into catastrophes. Doctors don’t know what to do with you and they truly don’t care to try. When you are already suffering from a mystery, the last thing you want is for your doctor to quit helping. … Continue reading Zebra looking for an umbrella
When they ask, “What’s wrong with you?”
My officially diagnosed conditions and their medical definitions are as follows: Ehlers-Danlos Syndrome (EDS) - Hypermobility type: “A group of disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening … Continue reading When they ask, “What’s wrong with you?”
