So many terrible things happen when you have a chronic illness. There are hours, sometimes even weeks and months, which go by before a calm spell hits. At that time, with the chaos of survival temporarily quieted, we have a chance to appreciate the lessons we learned during the bad days. Those small servings of good stuff can help us find reasons to push through and keep fighting. The primary lesson learned from dealing with a chronic illness is patience. It is inevitable. You can only push yourself so hard when your body is broken. Developing patience with yourself is…
For the bent, broken, and busted bodies in this world
Tagged lifestyle
A chaotic home
Life throws so many obstacles our way. It can be easy to get caught up in it all. This means sometimes forgetting your limitations and needs until you have passed a tipping point. Add to this the general difficulties of living with chronic symptoms in a chaotic home environment… maintaining your normal flies out the window. Many people with disabling medical conditions don’t get a lot of say in where they live. Some stay with family, others can manage independently, and some end up drifting between temporary shelters and homelessness. A few of us live with partners, friends, or strangers.…
A walk too far
I am currently staying in a place with good public transportation (by American standards). Not only are the metro stations abundant, the lines are also timely and run across the whole city. There is a stop half a block from my home that takes me to large grocery stores, banks, and other errand locations. Before planning my time here, I had to carefully analyze this urban layout. It had to meet my mobility requirements and provide enough amenities so that I could receive timely deliveries when I couldn’t leave the house. This overly planned style is not how I use…
