Tagged invisible disease

A chaotic home

Life throws so many obstacles our way. It can be easy to get caught up in it all. This means sometimes forgetting your limitations and needs until you have passed a tipping point. Add to this the general difficulties of living with chronic symptoms in a chaotic home environment… maintaining your normal flies out the window. Many people with disabling medical conditions don’t get a lot of say in where they live. Some stay with family, others can manage independently, and some end up drifting between temporary shelters and homelessness. A few of us live with partners, friends, or strangers.…

You look great!

Living with partially or completely invisible illnesses can be an emotional rollercoaster. People are quick to assume everyone not in a chair or without a cane is able-bodied. On one hand, they don’t discriminate against you based on your unseen disability. On the other hand, they don’t give you empathy or the space that you may need to handle your body.  When I take public transport, it has to be a high-energy day. I have been asked to standup so that someone mobile can take my seat. I have been jostled and rushed as everyone around me expects me to…