No fiber. No fat. My diet is pretty much the antithesis of commonly practiced healthy guidelines. Gastroparesis is an up and down condition. It flares and wanes depending on many things, some of which you have no control over. Pain, nausea, and vomiting are often present and relentless. Since gastroparesis is basically a paralyzed stomach, … Continue reading Can I eat this?
I moved again! Not far this time, but the arduous process of packing, unpacking, and settling in doesn’t seem to fluctuation depending on distance. It’s always time consuming and energy zapping. As I’ve written about before, I have moving down to a bit of a science. This was no different, with one major exception: My … Continue reading The end isn’t near
A few weeks ago, I underwent surgery to eliminate all of the cancerous tissue in my uterus. Even though I was under full anesthesia, it was fairly quick as far as surgeries go, around an hour, and I was able to head home later that day. I was incredibly lucky and they were able to … Continue reading Tripping into peace
What you didn’t know, was that you would spend the rest of your life trying to convince people that you are broken. Even as you wrestle with the daily mindfuck that is surviving with invisible conditions, people need you to prove your pain and symptoms. Your word isn’t enough. Descriptions of any detail will never … Continue reading Invisible proof
Sometimes my pain is all consuming and other times it plays in the background like a bad song that won’t end. When a new issue pops up, I straddle two worlds. The first is my hour-to-hour existence. The second is my larger picture. It’s a balance between deciding what I need to do to make … Continue reading Flying with a broken wing
There isn’t much I could write about the general moving experience that hasn’t already been said. Most of us will move dwellings at lease once in our lives. Everyone knows it’s a hassle. I… well it’s hard to keep count… I have moved over 30 times. I’ve moved countries, states, cities, towns, villages, houses, apartments, … Continue reading All over again
I’ve lost count of the number of prescription medications that I have tried. At last count, the number was creeping into the upper 50s. Yep. From the time of my first, body-destroying migraine until today, I have tried over fifty separate pharmaceutical drugs. I’m not counting the intravenous or in-hospital abortive meds. Just the pills, … Continue reading What’s the alternative?
I’ve always been bendy. It’s a talent that helped me stand out in dance classes and yoga. As a kid, it also made for a great party trick and an easy way to impress my friends. Can anyone fit in that box? Me! Who can reach the toy behind the sofa? Me! Can anyone match … Continue reading I’m just a girl – Diagnosing part 4 (Ehlers-Danlos Syndrome)
Two of my least favorite things to hear from doctors and non-sufferers is, “Pain is all in the head” and “Mind over matter”. There are strong truths in both statements. Modern science has proven that pain is an interpretation by the brain. It does not originate where we feel it. Science has also shown that … Continue reading The day after
I don’t currently live with anyone. Over the years I’ve lived alone and shared a home with roommates, friends, partners, and family. There are many positives about having a space to yourself. I think we can all understand the pleasures of finding out that your bustling or shared household is yours alone for a single … Continue reading Bedknobs