I don’t know how long it takes for something to be obvious. How many individual accounts of the same story? How frequently do we need to see the same symptoms? When do they, the people and institutions in power, connect the dots or follow the strings? More and more often, journalists and celebrities are publicly … Continue reading It’s still raining
Tag: disability
Failed fluffy friend
I’m an animal person. I’ve been around pets and wild animals for most of my life. I know how to care for and interact with them. It’s all very natural for me. That being said, I haven’t had my own critter for a very long time. With a busy life, moving around, and travelling frequently, … Continue reading Failed fluffy friend
Is it a secret?
I’ve written about the weight of sharing one’s chronic medical conditions for people in the public eye. I’ve also touched on explaining illness in all types of relationships. How does that look? What is your responsibility to share the issues and symptoms that you face? How much and how loud do you go? Who do you … Continue reading Is it a secret?
Care in the upside down
When the world seems to be in utter chaos, how do we get the care that we need? Well, our planet has never been perfect and our lives have never been “normal”. We have always been outside the model of average and strapped in for a turbulent ride. Now that lights shinning on general themes … Continue reading Care in the upside down
Crushed by assumptions
People with bent and broken bodies are often presumed to be weak. We are thought to have the same mental and emotional deficits that our external selves display. This becomes even more complicated with invisible disabilities. Looking healthy but having physical challenges means that people assume laziness and lies on top of the incorrect belief … Continue reading Crushed by assumptions
Life saving distractions
You aren’t lazy. Nothing about coping with chronic illness and pain equates to slothfulness. Each moment that you decide to stay in the fight is brave and exhausting. Every second that you don’t give over to the ease of eternal sleep shows enormous strength and fortitude. You are amazing and your struggle is acknowledged by … Continue reading Life saving distractions
Like. Lust. Love
Developing and maintaining a romantic relationship isn’t easy on the best of days. We all carry baggage and have expectations that we place on the other person. Even if someone’s situation is “perfect”, they will bring trauma and scars from their past, often subconsciously. When it comes to handling romance with bent and broken bodies, the … Continue reading Like. Lust. Love
Response required yesterday to a letter received today
We try, desperately, to meet and match deadlines set by the world. But, from work to leisure, time works differently for the broken. Our bodies’ needs outweigh our desires to keep up with a “normal” pace of life. On the truly terrible days, I can’t function. I can’t leave my bed. Every micro-movement, even just … Continue reading Response required yesterday to a letter received today
The good stuff
So many terrible things happen when you have a chronic illness. There are hours, sometimes even weeks and months, which go by before a calm spell hits. At that time, with the chaos of survival temporarily quieted, we have a chance to appreciate the lessons we learned during the bad days. Those small servings of … Continue reading The good stuff
A chaotic home
Life throws so many obstacles our way. It can be easy to get caught up in it all. This means sometimes forgetting your limitations and needs until you have passed a tipping point. Add to this the general difficulties of living with chronic symptoms in a chaotic home environment… maintaining your normal flies out the … Continue reading A chaotic home
Always Bent Sometimes Broken 