Can any of us live “sustainably” with a chronic illness? I aspire to leaving a small carbon footprint. The IG-worthy images of reusable and minimalist lifestyles appeal to me. The idea of living light and making a more positive than negative impact on my surroundings… that all feels very right. Unfortunately, those desires tend to … Continue reading Sustain-able
Tag: ableism
Eddie would go
I had the blessing of a childhood tightly intertwined with nature. Instead of days spent with a television babysitter or smartphone appendage, I was nearly always outdoors. Rain, shine, or storm I was outside with only my imagination, friends, and ingenuity. The reason I’m highlighting my relationship with growing up in a nature-filled life, is … Continue reading Eddie would go
So many sorrys
We’ve been apologizing for as long as I can remember. Saying sorry to anyone who happens to see you on a hard day. Cowering to the people who consider our existence an inconvenience. Trying to soothe the awkwardness of those around us when we are flaring. From the first time I was brought into the … Continue reading So many sorrys
Walk this way
Much of Europe has notoriously tiny roads. The age of their infrastructure means that cobblestones, tight alleyways, and unleveled sidewalks are commonplace. The same can be said for many other parts of the world. Things are even less user-friendly in rural and underfunded communities. Bumpy dirt paths, potholes the size of small planets, and worn … Continue reading Walk this way
Seeking sameness
A while ago, I met a man who wanted to date a female version of himself. His complaints about potential matches usually revolved around their way of speaking, dietary choices, hobbies, opinions, romantic needs, taste in media, etc. Basically, he was dissatisfied with each person because they had a personality of their own. He would … Continue reading Seeking sameness
Crushed by assumptions
People with bent and broken bodies are often presumed to be weak. We are thought to have the same mental and emotional deficits that our external selves display. This becomes even more complicated with invisible disabilities. Looking healthy but having physical challenges means that people assume laziness and lies on top of the incorrect belief … Continue reading Crushed by assumptions
Bedknobs
I don’t currently live with anyone. Over the years I’ve lived alone and shared a home with roommates, friends, partners, and family. There are many positives about having a space to yourself. I think we can all understand the pleasures of finding out that your bustling or shared household is yours alone for a single … Continue reading Bedknobs
Response required yesterday to a letter received today
We try, desperately, to meet and match deadlines set by the world. But, from work to leisure, time works differently for the broken. Our bodies’ needs outweigh our desires to keep up with a “normal” pace of life. On the truly terrible days, I can’t function. I can’t leave my bed. Every micro-movement, even just … Continue reading Response required yesterday to a letter received today
Air travel
I use to travel, a lot. Multiple times a year, different countries, long trips and short trips, all of which I did with relative ease. I started traveling at a very young age, the simplicity and near-comfort that I felt with the entire airport routine (regardless of my location) has been a part of my … Continue reading Air travel
Just a little movement
I didn’t realize that I was athletic until I got sick. Playing outside everyday and having sports integrated into my life was something I took for granted. I grew up in a rural place where there weren’t professional or academic sports teams. Everyone was just always outside doing activities. My dad grew up playing organized … Continue reading Just a little movement
Always Bent Sometimes Broken 